Monday, June 9, 2014

Autism and Vanity

My youngest son is beautiful. He is captivating and handsome and has dimples to die for and you can get lost in his eyes.

 My youngest son is also totally awkward looking. I joke a lot about Jake's physical traits from his adorable snaggle fangs in the front of his mouth, his low hairline (yes, I know he gets that from ME), his unibrow, his ears and his awkwardness as a whole. He is 13 1/2 and this is when most boys are awkward looking.... But as his body changes he has started to break out on his forehead.

This morning I was using a cream on his little face to clear up his breakouts and I was thinking to myself, is this MY vanity issue here? Does he even CARE? I am so overly protective of him in terms of things that might get him picked on in school like his clothes, shoes, etc. He could care less if he wears $5.00 payless sneakers or the Nike’s we make sure he has. He does not need name brand anything – it is meaningless to him, but we always make sure he looks his best because he has enough going against him in life being on the spectrum and having such severe ADHD and of course being an adolescent which has it’s own levels of trauma.

My point here is I was having a moment of feeling like I am projecting my own insecurities onto this kid who really when it comes down to it cares only about a few things….movies, YouTube, his IPad and his favorite TV shows. Then, as I was applying the ointment he looked up at me, grabbed my cheeks and said "Mom, I love you for making my pimples go away but maybe you should buy Proactive instead, it worked for Katy Perry”.


I have his back, vanity may play a role but if I can fix one thing to eliminate him from getting picked on I will do it.  

Sunday, June 1, 2014

All this Drama over an Orange?


The sun was shining and the cool yet comfortable winds were blowing outside. Inside our cozy kitchen however, there was a storm a brewin’…

I asked Jacob to eat an orange for breakfast. OH THE HORROR!!!! There was a 10 minute dance of him hiding in the other room and faking a “very sad belly”.

Finally he acquiesces and sits at the kitchen table. I place the peeled clementine (a tiny version of an orange for those that are not in the know of such citrus categories). He looks over the small pieces of fruit as one might if they suspected they were being fed dog shit.

“I will eat one little piece and that’s all!” He puts it in his mouth and gags. He then swallows it whole. “THAT’S it! NO MORE” he exclaims.  This is his first move on the poker game of breakfast. I see his hand and I raise him the loss of his IPAD for the day. Suddenly, he will try “just one more”.

This card game of his move vs. my move (or threats to lose his IPAD, BLUE RAYS and on demand) goes on for the better part of 5 minutes and he successfully eats 4 small portions of the already small clementine. I see myself as the victor here.

Jake has very specific eating habits which we have discussed previously. His current repertoire consists solely of MILK CHOCOLATE Ensure, Strawberry Blast or Kiwi Strawberry Danimals, Scrambled Eggs, White Bread, Peanut Butter, McDonalds ONLY Chicken Nuggets and French Fries from a very small list of establishments and his only drinking preference is Lemonade (Turkey Hill).

While my prince is in school however, his teacher has been able to get him to try a laundry list of foods that no matter what we do at home he refuses. He has eaten Snap peas, homemade strawberry ice cream, grilled cheese (this just about broke his soul but he did it!) goldfish crackers and pastry.

We plan on having his exceptionally dedicated and loving teacher come over this summer to work with him on eating these foods AT HOME as well. One thing that is common with Jake (and  kids on the spectrum in general) is that they are creatures of habit. He will eat eggs all day long at home but if we go to my in laws house he will not. Jacob also does not like to eat when other people are visiting. He has been known to very subtly (HAHA) say to our guests when he is hungry “Are you leaving now”?

I have dreams of the day that Jake sits at the dinner table with our extended family in front of a plate of lasagna, meatballs, salad and garlic bread.
THIS is something I want in his IEP. J

Up next on Mission “GET JAKE TO EAT NEW FOODS” is ¼ of a ham or turkey sandwich.
  If you live in the neighborhood and hear screaming and crying around noon I apologize in advance, I will try and stifle my tears.
Pray for us. :)

Text Messages I receive from his Teacher when he try's something new to eat in class. Sometimes there are successes and sometimes....there are failures.